Comments on: Desperate Questions

By: meleah rebeccah

meleah rebeccah — Wed, 11 Feb 2009 01:02:10 +0000

You are NOT having a Pity Party. You are grieving. Also, no one expects to you to GET OVER IT for a very long time. Be nice to yourself. xoxoxoxox meleah rebeccah's last blog post..Readers Digest Writing Competition

By: Kristin

Kristin — Mon, 09 Feb 2009 02:04:58 +0000

My girlfriend’s husband was diagnosed last May with ALS… we’re all still a little in denial about just how bad it is going to get… so far it is just presenting as weakness in his right hand so it’s easy to imagine that everything is “ok”.

Kristin’s last blog post..Day 4 of (let’s just go with) this Year – The Literary Grace

By: Marissa

Marissa — Fri, 06 Feb 2009 13:54:14 +0000

When my mother died after battling cancer for 3 months — the aggressive chemo treatments 28 years ago weakened her greatly, I went into a fog. I was only 15, but I dont know that age matters when you lose a loved one in such a traumatic way. Watching someone you relied upon for so much diminish at the hands of such a brutal enemy leaves you feeling justifiably angry.
I didn’t fully comprehend that my mother would never come back until a couple years later. Denial was my coping mechanism. Then, once I graduated and life was uprooted by friends leaving for college, I erupted. I went days not speaking. I punched walls and wished for death myself. I never attempted to take my own life, but the darkness enveloped me and I needed to be allowed to finally grieve. I obviously learned to cope, but learned that the best thing I needed was an ear and shoulder in MY due time.
I haven’t a clue what my point was other than letting you know you’re not odd in your means of coping. Try not to make sense of it.
love always

Marissa’s last blog post..Go away, shmuck, you bother me

By: Karen MEG

Karen MEG — Fri, 06 Feb 2009 02:17:32 +0000

Let’s rephrase that above, your post didn’t put me in a foul mood… I was there to begin with, I’m pissed because I have no wine to get pissed with .

Karen MEG’s last blog post..Wordless Wednesday – drinking buddies

By: Karen MEG

Karen MEG — Fri, 06 Feb 2009 02:16:21 +0000

Dan, you don’t know how much this post has not only touched me, but has given me a punch right into the depths of my pained soul right now. Hence my foul mood, intensified by the lack of vino in the house right now. Perhaps a better thing, as I am alone while the kids are sleeping peacefully upstairs.

We went through the same process of questions, notes, trying to prepare…but rather than a year, Dad was taken in a month.

You were absolutely right, my friend…we circled the wagon, we were as prepared as we could have been (just didn’t think we’d have to get it in gear so quickly) and we’re dealing now. But I don’t think we’ll ever get over it. Just as I don’t think you ever will either.

You’re a wonderful son, Dan, a great man, and there’s no pity for you from my end. Just an awful lot of admiration.

Karen MEG’s last blog post..Wordless Wednesday – drinking buddies

By: Fox

Fox — Thu, 05 Feb 2009 13:18:22 +0000

Dan, this was a profound, and horrible thing that happened to your dad, and you lived through it with him. You don’t have to get over it. There’s a big difference between pity and support. I see no pity here…just a bunch of people who really feel for you. Take all the time you need.

By: Loz

Loz — Mon, 02 Feb 2009 02:34:17 +0000

Don’t apologise my friend. I read your post and I kept thinking about the Garth Brooks song “The Dance”.

“And now I’m glad I didn’t know
The way it all would end the way it all would go”

I am not a fatalist. I don’t believe that pain is inevitable and something to be endured because there is a better life beyond the veil. I have no idea whether that’s true or not and sometimes I even those with a religious faith that allows them to find succour in suffering. But I do believe that we can find things that will make us better people if we can come to understand how ordinary people cope with extraordinary pain.

So keep writing because through that I learn as well.

Loz’s last blog post..Trust is like virginity…

By: Zoeyjane

Zoeyjane — Sat, 31 Jan 2009 09:37:04 +0000

If you're the person I see you as, then know this. You won't get over it. Because it's too important to veil over. You're allowed to be angry, somber, depressed and grieve for how ever long you need to be. No one should ask you, otherwise. {hugs} Zoeyjane's last blog post..On Wonders Never Ceasing

By: Amy Whipple

Amy Whipple — Sat, 31 Jan 2009 04:40:28 +0000

Dan – our family had all of the same feelings, frustrations and questions when my aunt, Mary Lou Krauseneck, was diagnosed with ALS. I now work for the ALS Therapy Development Institute in Cambridge, MA. ALS TDI is the world’s largest, pre-clinical, translational research lab working to find a treatment for patients living with ALS today. If you live in MA, you should try to tour the lab. You can reach my co-worker who helps families in the Northeast. Derek Breau can be reached at dbreau@als.net Please contact me directly (awhipple@als.net) if you would like. Your friend in the fight…

By: terri

terri — Sat, 31 Jan 2009 03:55:15 +0000

You may never get over it. You shouldn't be expected to get over it. You will be forever changed because of this horrible disease. And though you may never get over it, I do hope that time will ease your pain. Until then, don't feel bad. Don't apologize for hurting. It is your right. terri's last blog post..Life is Good - January 30, 2009