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As both of you know, I am an atheist. As both of you know, my dad is dying with Lou Gehrig’s disease. As both of you know, this has become a source of unbearable stress on the entire Leone clan. We are all dealing with it as a family, but in our own way.

A conversation I got into recently (actually an amalgamation of a few conversations I have had recently) boiled down essentially to some variation of this statement: If you believe in God, and therefore heaven, then at least you can find comfort in knowing that you and your dad will be together again some day. In the meantime, you could be happy knowing that your father will be with God in heaven. Don’t you want that for him?

It is important to note that I don’t believe in god in the same way I don’t believe in Santa Claus. I may want so badly to believe that a jolly fat man will land on my roof every year and provide me with a Hot Wheel loop-the-loop track. But wanting it does not make it happen. Desire does not validate . I can drop to my knees, pray to any one of the gods, look to the heavens, speak in tongues, belt out hymns in a church, drink chicken blood and absolutely none of that will make Santa drop down my even more non-existent chimney.

What keeps me up at night; what makes me cry at the drop of a hat; what worries me; what stresses me out and what can grab hold of me and punch me in my face is not that my father is going to die. Death is a part of life. What gets me mad, is that my dad will suffer. He is suffering. His body, his spirit and his dignity are slowly slipping away from him as this fucking disease chips away at each nerve ending. He is reduced to writing his words on paper; he needs to excuse himself from the table as he has to clear the food from his cheeks with his finger; the disease makes him laugh and cry uncontrollably and often at the exact same time; his sense of balance is compromised; he cannot cough efficiently and his swallow muscles are quickly becoming paralyzed.

When he goes, I will miss him. I will weep for him. I will find constant reminders in my day to day life of him. I will celebrate his life and mourn his death. But, as when anyone dies, there is no “other side” to look forward to. My dad’s soul will not rise into the clouds or sink into the ground. When he is gone, he is gone except for his memory. I do not look forward to or think about a day when I will join him. I only look forward to the day he is free from this unbearable suffering. The day after he dies, I will leave up to nature.

My opinion until I change it. Thank you for allowing me to express it.

19 Responses to “One Atheist’s View of Death and Dying”

No words except that we are here to listen to your opinion when you want/need to express it.

celticbuffy’s last blog post..And Now, Another Episode of House Buying Hell

I don’t know if I mentioned it here or somewhere else, but I read Epictetus’ Golden Sayings a few years ago, and one page/saying stayed with me.

Here’s a link to that page.
http://www.bartleby.com/2/2/139.html

He does talk about a certain He who brought us into the world, but it’s easy to see this as a metaphor (”He” as a force of nature, for example), unlike religious writings, which often attempt to reconstruct reality by using mythology.

I don’t know if it helps. It might, if you look at the rest of the book and realize The Great Questions have been asked thousands of years ago, and that by sitting there depressed about the lack of answers, at least you know you’re in the company of history.

All of us are here for you, during and after your father’s illness. You know how to reach me (no, not Plurk, you addict).

Lilacspecs’s last blog post..Mirror, Mirror on The Wall…

I have dealt with the death of my mother and my stepmother who I loved deeply. I knowit is difficult to be an atheist during this time, as many people express their beliefs when trying to give comfort. As you said, your comfort comes from knowing his suffering is over. You need not meet up with him again as long as you keep him with you for as long as you live.
If there were right words to say, I would say them. I know that there are not, so just know you are in my thoughts.

sophie’s last blog post..When we gave my father gray hairs

I’m sorry Dan. :(
Maria’s last blog post..Suck it Up: Real Men Don’t Cry

I think you’ve hit on the truest form of eternal life there is: memory.

Deb (Missives From Suburbia)’s last blog post..Time-Honored Traditions

I’ve struggled since yesterday when I first read this to come up with the “right” words to say, and have since realized, there are none.

At first, There was a part of me that wished you believed what I believe. Sometimes it’s easier to take life’s blows and be able to pass them off onto an unseen, higher being. Then it occurred to me that NOT believing, not putting the blame elsewhere takes much, much more strength than I will probably ever have. And asking you to start believing only because of what is happening to your father is rather hypocrytical.

I’m not sure what I’m trying to say. I guess only that your father, you and your family are in my thoughts and I hope you won’t mind that they are in my prayers as well.

Terri’s last blog post..Forced Family Fun

I know exactly what you mean, and I share your views. I have lost my dad and both my grandmothers, and the relief was in knowing that they were no longer in pain/impaired/suffering.

Ingrid’s last blog post..Tuesday afternoon

Dan, I’m so sorry. You’re right, no one can force themselves to believe anything. That would be an impossible task. I’ll be praying for your family and that you find true & lasting peace.

Oh, Dan, I am so sorry. I hope his days are as pain-free as possible. That is an ugly disease.

Not that it matters, but I don’t know what I believe. I went to Catholic schools but don’t consider myself a Christian, nor a fan of organized religion in general.

I’ve had a few really weird things happen to me that could, I suppose be coincidences, but seem to rise above that. So, I kinda think there’s ’something.’

Maybe that ’something’ will someday be expainable by physics…quark or string or some other theory.

I dunno. I do know I wish your father wasn’t suffering so, and that it didn’t bring such pain to the ones who love him.

Take comfort during this horrible time with what you can. For someone so caring and loving as you, it’s very difficult to watch those around you suffer.
However, keep those pieces of paper he writes on, join him in his bouts of laughter and embrace him when he cries; let him lean on you when he needs stability.
He hasn’t lost his dignity, Dan, no thing can take that away from this great man. There is tremendous honor in serving and great dignity in letting one help.
Take care. I really feel for you and your family. Good wishes your way…

I dont even know what to say. Except that you are allowed to have and voice your opinions. And I am glad that you did.

I hope THAT made you feel a teeny tiny better

meleah rebeccah’s last blog post..Bad News

I found your entry one of the most moving pieces of writing I’ve ever read. I was attracted to it because I’ve been hunting for atheists like myself. So many Bloggers sound like great people but I can’t empathise with them because I am such a staunch unbeliever.However, the search took second place when I became immersed in your terrible struggle. You are going through one of life’s most difficult experiences.I have faced my parents’ deaths (no not lingering) and my own cancer (cured) without swerving from my non-belief.I find that by inserting the word LIFE wherever GOD is mentioned, one gets the same feeling of awe and gratitude.As for an after-life, apart from the idea being ridiculous, would any of us want it? Your father included? Is he a religious man himself? I write nonsense on my Blog but I touch on my beliefs in two of my daily poems ‘Buttercups and Daisies’ and ‘Froth’.I’d be happy if you shared.

By the way, I am an Australian Grandmother.

Rinkly Rimes

http://rinklyrimes.blogspot,com/

I just tumbled over here. My beautiful, funny, warm, wonderful mother died of ALS in March 1995 just before my college graduation and the day after her 55th birthday. I believed in God back then. Now I don’t. I want to, but I can’t. I do believe in the love of the people who gathered round us for years cooking for us to ease the burden in some way, and I do believe that my mother’s laughter and smile lives on in the lives of those whose lives she touched (there were many) and even in certain lines in my face or thoughts in my head, but nothing makes it OK that she suffered in ways that I don’t need to explain to you, and, sadly, the worst is ahead.

I’ve found my own kind of peace year by year, and more now, finally, thankfully, I remember the woman my beloved mother was *before* ALS instead of as she was so broken and so trapped by such a cruel disease. Everyone experiences this kind of thing differently, and I do hope that you will find some peace, someday, somehow with all of it. My peace isn’t perfect, but it’s enough that I can wake up every day and move forward even if I’ll always feel robbed.

You don’t know me from Adam’s house cat, but don’t hesitate to email me if you ever feel like you want to. I understand if you don’t. Whatever. My heart goes out to you and to your family, and I’m so sorry that this fucking disease even exists and that it struck your family.

Maggie’s Mind’s last blog post..Haiku Friday 7/18/08

Hello Everyone!

Thank you so much for all your words. Just regrouping and want to reply personally to many of you. Stay tuned.

Thank you all!

Dan Leone’s last blog post..The difference a few ounces make

I’m sorry to hear about your dad.
I don’t know what to say as both of us have contradicting beliefs. And I don’t want to convert you into anything or be preachy here. But somehow it isn’t really that bad to hope for something after this life. After all it wouldn’t cost you anything. If the memories can lessen the pain, hold on to it and make the most of the time left.

your good father is being immortalized by the kind of son you are now.

sometimes it requires a small leap of faith to have a miracle. Even death could be a miracle, because it could be the beginning of a new thing…

my thoughts are with you Dan and your loving father and the rest of your family.

Nope, there is no god. Too bad, because if there was, we could sort him out–as they say in England–for what he does. Taking him out of the equation doesn’t diminish us as humans, as you’ve seen. I’m really sorry about what you’re going through; good luck to you and your family.

I know exactly what you mean.
I’ve got a dear old friend dying in RSD (it’s a chronic neuropathic pain disorder) and the main difference between us is that I don’t share his faith in God and the other side.
He was crushed when he realized that because of that we would never meet in the “afterlife”. I wish I could “believe”, but you can’t snap your fingers.

I’ve lost touch with him since about 7 weeks back now since he’s in the ICU and I hope that he will find some peace in his version of “the other side”.
However, as you pointed out, I do not not believe in God or something greater than ourselves the same way I “know” there’s no Santa.
That’s different :)
Christa’s last blog post..Crescent Mechanical Moon

Something to say?