Pity party is over….for now!

Posted by danleone on May 11th, 2008 filed in my father, parenting, uncategorized

You may not have noticed, but I haven’t been “around” the internets for a while; I certainly haven’t been blogging about it. Other than a few random tweets on Twitter (I would be honored if you would follow me here), there really hasn’t been much happening to the Virtual Dan.

You see, the 3D Dan has usurped time and energy from the Virtual Dan. Therein lies my biggest problem: Life gets in the way of living.

I am not so selfish as to assume my life is any more stressful than yours. But I am bold enough to tell you that I am not doing a good job of managing that stress. I have always prided myself on how well I can handle stress. I was an EMT for a while and I even took the Air Traffic Controllers exam ( a million years ago) when I realized that being a pilot would take a LOT of money. I loved stress and crisises crisiums crises.

Things are different now. The stress is no longer an adrenaline rush. This stress is a pervasive thread that weaves itself into each cell in my body. This stress has now been so internalized that I know there is a physiological price to pay.

Here is a brief rundown of some of the things on my plate.

My health: My leg has healed leaving yet another scar the size of a saucer on my thigh.  I need to receive Remicade infusions every 6 weeks. Each infusion takes at least 5 hours. Very draining.  Everything is fine but I fear a flare up at any time.  One result of my previous flare-up is that I stopped running as it is completely impossible to run with this disease. Starting back up again has been a challenge. I did go for a 3.1 mile run the other day though….now it is all about consistency (for those who follow my blog, I bet you can see how challenging “consistency” is for me).

My Baby Goats: Insanity is the rule at the Leone Estates. Each baby goat brings their own set of challenges to the table. I’ll stop here, before saying something I might regret.

My Dad: ALS (Amyotropic Lateral Sclerosis) is a shitty disease. I am watching day by day as my dad progresses through the symptoms. He is virtually unable to speak now and his swallowing is severely affected. We all know what is happening to him and what will happen, but he prefers to work through this one day at a time. This is completely opposite of the “big picture” approach I would take if faced with the same prognosis, but I totally respect his perspective.

My parents live upstairs from me and we bear witness to the merciless, tomorrow-will-be-worse-than- today, progression of this disease. This puts an intense amount of pressure on the kids and I feel this leads to some of the problems that I alluded too above.

I know my dad is suffering and will suffer and that kills me.

Last Sunday was my niece’s First Communion in the Catholic Church. My parents have always considered themselves Christians but I have never in my life seen them practice it.  Last Sunday, we were all sitting in the same row and at one point, I looked over and saw my father on his knees praying. I may be an atheist, but this tore at my heart and I had to leave the church weeping like a child.

My work: INSANE! A pending deadline on a major, highly-visible project is stressful enough without the added stress of my normal day-to-day duties. But, truly, I love my job.

So, that is it in a nutshell…utterly uninteresting. The only purpose for blogging about it is to give me something to blog about.

Thanks to both of you for listening!

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7 Responses to “Pity party is over….for now!”

  1. Dan Says:

    Sound rough. Very rough.

    Hope at least some of your stressors ease soon Dan.

    Dan’s last blog post..Three men contemplate a dying fish

  2. paisley Says:

    dan… more an “i’m here” .. than a comment… just want to let you know you are surrounded by people that are interested in you and your life,, and not simply looking for mere consistency.. please keep us filled in… XXOO

    paisley’s last blog post..uncle alvin’s cabin

  3. ender Says:

    OMG OMG OMG OMG OMG OMG
    you posted. days ago and i missed it until now.
    OMG OMG OMG
    oh wait. i mean OMW OMW OMW OMW OMW
    oops. *blush*

    anyhow. dude, you’ve got a crapload on your plate and anyone would be struggling to carry all that stress. i miss “hearing” your voice when you don’t blog or hit cre8 for a while – but i understand all too well what the stress does to most people’s online time and their ability to continue writing. most of my quiet spells on the blog come from either times of intense busy-ness or, more likely, internal stress.

    you’ve got more fans than you think ….

  4. Dan Leone Says:

    Thank you all for your kind wishes. I know I have been whiney lately and I need to “get over it” and face these various challenges.

    I sincerely appreciate your words….as always!

    Dan Leone

    Dan Leone’s last blog post..Pity party is over….for now!

  5. meleah rebeccah Says:

    wow. you really have your hand full of difficult issues. HANG IN THERE!

    meleah rebeccah’s last blog post..Chris Rock

  6. tiffany Says:

    Do you ever wonder what life will throw at you next? Sometimes I feel like I can not hit any lower than I already have, and guess what, I seem to top it off with something worse. Just remember, Tomorrow is always a better day. I hope you are relieved of some stress soon.

    tiffany’s last blog post..Mommy of 3 and still a Princess

  7. Hotmamamia Says:

    Be vigilant Dan…stress has a way to insidiously bite you in the butt…as trite as it may sound…BREATHE and be mindful…it will help you get through…

    Hotmamamia’s last blog post..Introducing the Deli Family

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